I suffer from CRPS.

I also have other medical issues that end me in the hospital. I have to explain to each doc that comes in what CRPS is. EACH TIME. Noone wants to believe you. You lose friends, relationships and family members. And most medical people think your lying or it's in your head.

This is why it's nickname is "The Suicide Disease.

I've never wanted to throw something at my tv so bad before. I feel for this family. Especially for Maya and the loss she has suffered. Stress can trigger a CRPS flare up. Just like the hurricane did.

The ignorance and arrogance of these doctors are unreal.

Great documentary.

I'll try to hold onto the belief that everyone in this scenario had the best interests of children at the heart in their positions. I'll try, although there's a huge conflict of interest issue that I'd like to see a second documentary tackle all in itself.

(The assessor also being part of the for-profit corporate care system that the referred children go into.)

But lets say that the care givers are there still to "do no harm" and were wanting the best for Maya. This documentary still poses the problem of what to do for "unicorn" illnesses. What to do when doctors from different establishments differ on diagnosis and treatment. Who gets to decide when there's not a widely established protocol?

And mainly, who gets the final decisions when it comes to health.

I'm not sure whose diagnosis and treatment are better, frankly, and will have to read more. Perhaps on that it was a toss up or even that the hospital involved was right.

However, when a hospital thinks parents seeking treatment for a child are wrong for following a doctors orders, there I can see what everyone else here is seeing. How would a mother or father know which doctor to trust? And why would they believe this group at the hospital when they've seen actual improvement before this that no one else got?

There had to be a better way to handle this.

There had to be a more HUMANE way to handle this.

There should be a less corporate, systemic way to handle this.

But unfortunately for some, the system overrules the carers and a few bad apples playing into that spoil it for the bunch.